Training with IBS/ Coeliacs.

[lovegrove]

Hi,

I am currently going through a series of elimination tests for IBS or possibly coeliacs (gluten enteropathy). Of late this has really been affecting my training, as well as other areas of my life.

If anybody on here has experience living and training with either of these conditions, I would really appreciate some advice. Please feel free to PM me if you don't feel comfortable posting.

Cheers

[ProMaiSi]

Mate the wife has coeliacs. I'll have a chat with her later see if she can be of any help. I know she gets all the gluten free stuff and as far as I am aware is the member of some support group.

Do you or have you suffered from anaemia? She had it for a long time and the GP kept giving her iron supps, but they didn't help, so I got her to go back and investigate further and it was then she was diagnosed with it.

Is there anything in particular you would like me to ask her or just general stuff?

[lovegrove]

Hey ProMaiSi,

I have not suffered from anaemia, though of late because of the problems I have been having with my stomach and stuff, I haven't really been eating properly so it wouldn't surprise me if my iron is a bit low.

Just some general info for now mate would be really helpful, and if she trains or does regular exercise any advice about coping strategies that has worked for her would be great. I know these sorts of things tend to be different for individuals, but any advice for now would be great.

You could ask her if there is anything she particularly rates highly for breakfast. I'm currently living with my gran at the moment, and I have found that nearly every foodstuff in the house has gluten in it which really sucks as I love weetabix lol.

[Tomatohead]

I reckomend ya a get a food sensitivty test not alawys coeliacs if its got the symptoms pm if ya want some more info mate.

[lovegrove]

You have PM.

[ProMaiSi]

Hi lovegrove

As Tomatohead rightly mentioned, wait until you get a proper diagnosis.

The missus copes with it pretty well. Once she was diagnosed she saw a dietician and they gave her prescriptions for certain gluten free staples such as bread, pasta, flour etc. She does train MA, but not competitively or very seriously, so its not that much of an issue for her. She mainly eats rice, pasta bread etc as her source of carbs. Pretty much anything protein wise.

As for breakfast, there is a huge range of gluten-free cereals and products available in supermarkets and health food shops. I think she actually prefers making her own bread with the flour as the pre-cut stuff has a strange taste and texture. The pasta is great though.

If there is anything else you want to know or we might be able to help you with, just drop me a pm.

Good luck

Si

[Emmet J]

I have Ulcerative Colitis.

Which is absolute shite.

I'm in constant pain when it's flaring up (which it has been for the last 5 weeks), because my bowels are essentially ripping themsleves apart and causing me to lose a load of blood.

As a result, this morning I took 8 Prednisolone steroid tablets (the bad kind that rot your skin and weaken your bones), 2 calcium tablets (in a futile attempt to protect my bones), 3 Mesazaline tablets (to try and keep the condition down), an Azathioprine tablet (which stops my immune system), an iron tablet to restore what I lose through blood loss, and an Omeprazole tablet to keep my stomach lining from being detroyed by all the rest.

I'm training more than ever at the moment.

My doctor says I'm an idiot.

Good times.

[Tomatohead]

You can treat that naturally without gettin all the nasty side affects.

[donna]

hey lovegrove
my daughter is a coeliac and has been now for 7 years (she was diagnosed by blood test then biopsy at 7 is now 14)

she took about 6/8 months to get her system gluten free then all the symptoms disappeard and she now although on a gluten-free diet for life has as much energy and is as normal as any other teen.
you are near me i think in devon or am i wrong pm me if you want to meet up charlie (my daughter) said dont worry she will tell you EVERYTHING about it lol if that would help she is amazing with it and all that goes good and bad.

when she was first diagnosed she was training 3 times a week in TKD and did drama once a week so as long as you manage it, it is no problem really x


www.coeliac.org.uk if you join them (free) they will send you a 'bible' thats what charlie calls it! is a pocket size book with all the supermarkets listed and which of there products are gluten-free. you also get a mag 4 times a year and meetings etc.

pm me if you want to meet or want to know more but dont worry it wont affect your training long-term x;)

[donna]

I think she actually prefers making her own bread with the flour as the pre-cut stuff has a strange taste and texture.

Good luck

Si


hey si
has she tried the 'lifestyle white sliced' you can get it on script they bake to order and even i can eat it (non-coeliac) lol

donna
x

[ProMaiSi]

Cheers Donna, I'll pass that info onto her. Shw ill be pleased of an alternative.

[lovegrove]

Hey everyone,

Thanks for the responses, they have been really helpful.

I have a blood test at the docs next week, and we are taking it from there.

Donna- thanks for your response, depending on what the outcomes of the test, I'll let you know regarding your offer. Where are you training now?

Again, thanks all.

[nomad]

I emphathise.
I have both of those sad sad conditions (sad for my training partners when I fart and those in the toilet after me).
It has made my diet manageable but very expensive (I'm a heavyweight, i eat a lot).
managed well though, long term may be better as you find yourself with more nutiritious foods out of substitute for the crap you may had consumed before.

I've always felt lonely in this food world.. nice to find somebody else who suffers haha.

Good luck my friend.

[donna]

Hey everyone,

Thanks for the responses, they have been really helpful.

I have a blood test at the docs next week, and we are taking it from there.

Donna- thanks for your response, depending on what the outcomes of the test, I'll let you know regarding your offer. Where are you training now?

Again, thanks all.

anytime hun good luck with the test hope its not but if it is, is not as bad as it sounds honest

we are training at exeter bjj at fitness first, fantastic bunch of guys and superb instruction (wish we gone there sooner lol) what about you?

[lovegrove]

Nomad- Thanks for your response, it was enlightening. I have noticed over the last few weeks, while eating has been horrible I have been eating far more fruit and vegetables, so I hope that trend continues.

No what you mean about the farting too mate, before I was given some medication that helped, I could have hovered when grappling lol.

Donna- Just a few guys in Chudleigh as and when, definitely interested in Exeter BJJ in the future.

[manimal]

i used to suffer with IBS a while back , and constant sinusitis which i am told is related. completely cut out all dairy, all fatty foods and started taking psyllium husk with LOADS of water and ive been pretty much fine ever since. I also avoid red meat and bread.

[Emmet J]

Were you talking about my UC Tomatohead?

[Tomatohead]

yes mate drop me a pm if ya want more info

[kungfukris]

i used to suffer really bad, fried food and red meat set me off but i was generally bad with everything. i have been following the warrior diet now for about 3months and it seems to have completely cleared up and i can handle anything i eat. a lot of people bash the warrior diet but i have never heard of anyone not liking it after they have tried it for i while. its the best thing ive ever done in terms of nutrition and the fact that my ibs has cleared up is just one of many benefits ive had from it. can get the book entitled the warrior diet from amazon

[lovegrove]

Thanks for all the replies, been really helpful. Had a blod test today so should know in the coming days.

[EvilRachel]

Good luck.

[donna]

Thanks for all the replies, been really helpful. Had a blod test today so should know in the coming days.

hey hun fingers crossed but as i said being a coeliac is no probs x

[lovegrove]

Yo,

Ended up being in hospital for 8 hours on saturday, as was told to contact health services if I had major stomach cramps again, which I did.

Anyhows, I am going to be going a series of unpleasant tests in the next couple of weeks to rule out things like coeliacs, zollingers and crohns. They still feel I have proper motherfucker IBS though. I have been recommended a diet free of gluten and lactose.

Even though this is only my second day on it, feel a bit better already. I'm going to give it a week, and if I improve still going to do some very light exercise. Anyway, I was using Reflex Instant Whey in water a few weeks ago. I'm sure I read somewhere it is pretty much lactose free, so could I start using it again? Or should I go for a soya protein powder perhaps?

[chubs]

That's a crappy way to spend a Saturday! Hope they manage to figure what the problem is soon. x

[lovegrove]

Thanks, so do I lol.

[kungfukris]

i wouldnt even think about going back on any sort of supplement ever again based on my past experience. even the lactose free ones used to fuck me up. be better off spending the money on tuna and nuts, protein supplements are good for convenience but i would recomend that anyone with any type of bowel problems stay well clear.

[donna]

be careful with hidden gluten too hun

is in very strange things especially sup powders so check carefully and alot of people wont know what you are talking about when you ask if it is glutenfree, so tell them you are allergic then they are less likely to just shrug and say yes when they actually have no idea!!
some odditiesnot all makes but check these carefull
white pepper
frozen chips are often coated
pre-grated cheese (if you are out)
chocolate milkshake/hot chocolate
watch for cross contamination too if you live with anyone have your own cupboard to keep stuff in your own shelf in the fridge.
make people use a spoon for jams etc and have your own butter.

depends how bad you are charlie has to have a seperate toaster and has her own breadboard and knife too. but if not that sensitive a good antibac spray will help.

just a few bits off the top of my head if you want to know anything else you know where i am x

[lovegrove]

Damn that sucks about supplements, whats a good post workout snack then?

Thanks Donna, thats really useful to know. I bought some soya milk today. My god that was vile. Is rice milk nice?

Is rice bread nice? The hospital gave me some gluten-free bread but I hated the way it 'powdered' in my mouth so going to give rice bread a try.

Thinking of positives, I was working last night and when I finished I went into the local Co-Op to pick up something for tea that didn't involve making as I was knackered. Pretty much EVERYTHING had some form of gluten in it, be it flour, wheat oil, wheat husk or just wheat. Was kind of shocked, the only thing I could have was a box of micro chips (which were rank). Anyway, the point I am trying to make is that I can't eat shit now, so I look forward to having a proper healthy diet!

[Tomatohead]

you tried doing the anti candida diet i sent you yet?? I will warn you wil,l fell like death for 2 weeks

[lovegrove]

I started trying it, then went into hospital. I'm going to combine it with eating gluten and lactose free. Tomatohead, didn't you mention something amount glutamine being good for stomachs? My mums mate mentioned a probiotic she takes that really helps, but I cant remember what is called. Any suggestions?

[donna]

the best bread you can get is lifestyle white sliced bread you can get this on prescription,
or sainsburys free-from isnt bad, rice bread isnt the nicest!

contact the coeliac society and they will send you he little booklet it is the easiest way to feed yourself x

[Tomatohead]

yer glutamine is excellent for the stomach lining take around 10g a day, Try taking actizyme by natures plus its a probiotic and digestive enzyme mate I take it its a nice product.

[kungfukris]

post workout i usually have a can of tuna. that tides me over until the evening when i pig out (good stuff, mainly whole foods, salmon, chicken). i also have about 3 or 4 handfuls of almonds a day. my protein intake is pretty high as a result of that. nuts also bung you up a bit wich iv found helps me with my ibs aswell.
im really not a huge fan os supplment swith regard to bowels.

[Emmet J]

I'm back!

Just been in hospital for the last 11 days!

Haven't had more than 3 hours consecutive sleep for almost two weeks thanks to senile old people pissing on the floor around my bed and crying all night.

Having Ulcerative Colitis Flares = Good Times.

[poeun]

UC is tough...

I was lucky! had one really tough flair-up, lost 5 stone and spent 20 days in hopsital, then it all stated to be come good as i had my colon removed, i had a bag for 6 months then a pouch created from my small intestine, 3 op's later and i'm great. that was 17 years ago!
ok I make frequent trip to the toilet but my health and finess is way above that of my peers.
PM if you want details

Simon

ANGRRR

[boxingbrit]

I have Colonic Irrigation every 6 weeks and have suffered no more stomach problems since about the 3rd treatment.

[Emmet J]

Poeun - I know that the only real way to be sure you get rid of UC is to get rid of the infected part of the colon, but I'm not up for that... yet.

Only just had it a year, and only now moving up from Asacol to Azathyaprine, so I've got a few more drugs to try out yet before I start gunning for the surgery.


Boxingbrit - I've sent you a PM regarding the Irrigation mate.